Time....
When I was diagnosed with Fibromyalgia, seventeen years ago, I knew nothing about it and neither did my doctor. Since then, I have spent hours researching; read books; chatted to fellow sufferers; visited my doctor's surgery more times than I would have liked - and I still know little about it!
What I do know is that I have to stay positive; exercise when I can; smile when I can; do when I can!
I think that ones my biggest worries, is not knowing how I will be when I'm older and will I be able to make others understand how I am feeling. I recently lost my dear dad to Alzheimer's after spending the last three heartbreaking years of his life in a care home. It was difficult to tell if he was ill or in pain and he didn't always say - we didn't always understand. It's made me think a lot about my own future years. If family don't understand now, how will they then?
It's a very unpredictable illness, so I may be worrying for nothing! I may have recovered by then, or cured even, but I'm not holding my breath. I am however dealing with it in the best way I can - the best way for me and I feel gratitude for everything I can do.
There was a point in my earlier days of diagnosis when I refused to believe that it would win and I tried to carry on with my working life and my social life and, yes, it took it's toll. At one point, I could barely dress myself and walked in slow motion and I realised that I needed to take it more seriously. I needed to help myself.
One of the doctor's at my surgery had been training to do acupuncture and I was referred to him for treatment. He hadn't helped anyone with Fibromyalgia before, but he knew of it and wanted to help me. He would normally give six sessions, but because I was an 'experiment', he gave me ten - the results were marvelous and by the end of the course, I could put on my cardigan or jacket, without his help. I will never forget his kindness and understanding, but it also taught me to be kinder to myself.
I've found over the years, that Fibromyalgia is very up and down - good days and very bad days and I try to savour them all. I have given up on prescriptions and stick with natural methods, apart from pain killers, and I only take them on really bad days. Mindfulness has helped me tremendously, but I have found it easy, as an extension to the meditation that I've been practicing for many years. I think it helps with the anxiety and the pain - or, at least, the coping with it.
I've met some wonderful people online, but I wish the circumstances under which we've met, had been different.
Thank you for taking the time to read this :-) I hope you have a day full of smiles and little pain.
Namaste.
What I do know is that I have to stay positive; exercise when I can; smile when I can; do when I can!
I think that ones my biggest worries, is not knowing how I will be when I'm older and will I be able to make others understand how I am feeling. I recently lost my dear dad to Alzheimer's after spending the last three heartbreaking years of his life in a care home. It was difficult to tell if he was ill or in pain and he didn't always say - we didn't always understand. It's made me think a lot about my own future years. If family don't understand now, how will they then?
It's a very unpredictable illness, so I may be worrying for nothing! I may have recovered by then, or cured even, but I'm not holding my breath. I am however dealing with it in the best way I can - the best way for me and I feel gratitude for everything I can do.
There was a point in my earlier days of diagnosis when I refused to believe that it would win and I tried to carry on with my working life and my social life and, yes, it took it's toll. At one point, I could barely dress myself and walked in slow motion and I realised that I needed to take it more seriously. I needed to help myself.
One of the doctor's at my surgery had been training to do acupuncture and I was referred to him for treatment. He hadn't helped anyone with Fibromyalgia before, but he knew of it and wanted to help me. He would normally give six sessions, but because I was an 'experiment', he gave me ten - the results were marvelous and by the end of the course, I could put on my cardigan or jacket, without his help. I will never forget his kindness and understanding, but it also taught me to be kinder to myself.
I've found over the years, that Fibromyalgia is very up and down - good days and very bad days and I try to savour them all. I have given up on prescriptions and stick with natural methods, apart from pain killers, and I only take them on really bad days. Mindfulness has helped me tremendously, but I have found it easy, as an extension to the meditation that I've been practicing for many years. I think it helps with the anxiety and the pain - or, at least, the coping with it.
I've met some wonderful people online, but I wish the circumstances under which we've met, had been different.
Thank you for taking the time to read this :-) I hope you have a day full of smiles and little pain.
Namaste.
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