'Courage doesn't always roar. sometimes courage is that little voice at the end of the day that says I'll try again tomorrow' Mary Anne Radmacher

The first thing I want to say is that I am not mad and I am not a hypochondriac. But you all know that, I hope. I only wish that my family and my doctor did!

I still find it hard to understand why I can go to the doctor and tell him that I have migraine, or backache, and he will believe me, but when I describe the many strange symptoms I have, that belong to the fibro, he just puts me down as a neurotic woman. No, I am not!  The pain I feel is there! The burning, soreness and itching on my body is real! The pain that can be agony one day, might have moved to a different part of my body by the next day! Or a new pain may have joined it the next day! Or that my teeth and gums can be constantly sore and can be covered in ulcers one day and are gone a few days later. that I bruise for no reason and it can take months to heal, as does any injury that I have. Dare I even mention the number of times it feels as if something is crawling up my leg, but when I look there's nothing there.  Or am I fooling myself and there is a kind of madness here?  Fibro madness! 

It's a crazy, complicated illness and it's mine. I've been reading The Guest House by Rumi and meditating more on acceptance. I decided long ago, long before I was even diagnosed with fibro, that despite the things that I was going through in life, they didn't have to affect my smile. in fact, I was quite young when I realised that it was a way of being happy, despite the circumstances'. someone up there was looking out foe me and I do believe they still are, because for some strange and wonderful reason, I am still here.

I seem to have spent my whole life putting everyone else first - making everyone else happy - and seeing them happy made me happy. I wonder if that's another common thing amongst fibro sufferers. I had a very traumatic childhood and marriage and I think that made it more important for me to ensure that no one ever felt as I did, especially as a child. And I've never been good at saying No!  Something I do have to learn.  

living with a chronic illness is hard enough without people doubting that there is anything wrong with you, but I know and I'm dealing with it in any way I can. Diet isn't easy as I suffer with ibs, but I do try to eat healthily. I have a short stretching routine which I do in the morning and I take short walks when i can. If not, I put some music on and it transports me to healthier, more mobile times. I do a lot of research online and I am still amazed at the number of symptoms that can occur with fibro. I'm not alone because lots of people read my magazine on Flipboard, which is where I share a lot of the information that I find.

I know that these symptoms will not be the same for everyone and I know there are maybe more, but I don't write about them with the intention of scaring anyone, but rather to not be afraid if you do share the ones that I have, though check with your doctor if it worries you. You may have one who actually  listens. I do hope so.  

Be kind to yourself.

Namaste

Comments

Popular posts from this blog

Be careful what you wish for ………

‘You can’t always control what goes on outside, but you can always control what goes on inside’. Wayne Dyer.

‘Before I came here, I was confused about this subject. Having listened to your lecture, I am still confused. But on a higher level’ Enrico Fermi