Moments!

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Today has been quite painful and movement difficult. not just the fibro, but a sprained muscle in my back which is making life more than a little uncomfortable.

At present I am in my room with Sparkle (my cat), by my side; a candle burning and it's a moment of  bliss. Soon I'll have a spell of meditation, which I hope will help me to sleep and without the usual nightmares!

Today has been fibromyalgia awareness day, chosen because it was the birth date of Florence Nightingale who also had fibromyalgia - or fibrosis as it was named then. My mum was diagnosed with it when she was a young woman and my family always thought that she exaggerated her health, as they do with me. They thought she was mad because the fibro, together with IBS meant that she didn't always attend functions and wasn't comfortable leaving the house always. It's sad that they think I'm as 'mad' as she was, because I suffer the same.

When I was first diagnosed, It was difficult to find any information about it and although my doctor could tell me what I had, he couldn't tell me anything more about it. Luckily, I now have Internet access and can chat to people online and I know that I am not mad!  Both IBS and fibromyalgia are very unpredictable, but i find that IBS is the hardest to deal with. It's uncomfortable, restricting, embarrassing and painful and yet most people think I should just take a pill and all will be fine - if only!

I don't ever think "poor me", as I know that I could have many more problems, as lots do have and I wish so much that I had a magic wand to make everyone well. I have a lovely room and my own toilet - my own privacy - at home. I have Sparkle, I have hobbies, I have smiles and I can feel moments of joy when I connect with nature. I have blissful moments despite the pain.

I wish everyone a peaceful and pain free night/day, wherever you are.

Love and light 🌹

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