‘I heard a birdsing, In the dark of December. A magical thing, And sweet to remember.’ Oliver Herford.

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 It’s been a while again since my last post.  It’s that time of the year when I seem to struggle with finding the energy, and the health, to prepare for the festive season.  My spoons have to be chosen carefully. Living with fibromyalgia means constant fatigue.

Did I actually say that? Chosen carefully!  If only it were that easy!  It isn’t always possible to plan the day around me and what I need and, yes, I forget about the spoons and I plod on, even though I know there’ll be a price to pay……and there will.

However, despite being so completely exhausted, and stiff, and feeling out of it, I can experience moments of joy that make me smile and will keep me smiling on the days when I need one. And there are many days when I need one! Hence the heading. I do love to hear the birds and it always makes me think of the quote by Maya Angelou ‘why does the caged bird sing……because it has a song’.  It . doesn't sing because it's happy, it sings because it can

 This quote reminds me that even when I’m in pain, or exhausted, or feeling down - and I often do, I can still smile. It isn’t easy, but it is possible. It’s also proven, that smiling can have a positive effect on you.

Living with fibromyalgia means constant fatigue. It's a draining battle, where rare energy bursts become a race against time to complete tasks and I know you’ve ll been there, as I have. Learning not to overdo it is extremely hard.

It's a tough journey toward accepting this new normal, and I’ve been trying for almost thirty years. . It's astonishing how much exhaustion & chronic pain Fibro fighters adapt to and rarely anyone notices how hard the battle is for us. 

Having lost some of my best friends over the years - and my partner - I appreciate that I am still alive, however I am feeling, and I want to experience life for them  I owe it to them to keep going in the best way I can. And I remind myself, that whatever anyone else might think, I am doing the best I can and I’m proud of me.

I began this post pre Christmas when I was shopping, wrapping and preparing for any surprise visitors. And, of course, dealing with winter. A little late, I confess, but life is changing for me in a way that I never imagined. My head is in turmoil, and my health is suffering, but I’m hoping it will led to happier times ahead. 

I hope to post again soon with an explanation, but in the meantime, I’m sending gentle hugs and positive thoughts to all of those who need them. 

Namaste



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