When you feel tired - dare to keep going...

I've never found it easy to talk about myself or my illness and I think I can count on one hand, the people who actually believe the problems I face and the effort involved in day to day living, and show understanding. It isn't easy, I know, when the symptoms are so many and varied - it confuses me too!  One of my methods of coping, is to keep a notebook (to be honest-several notebooks!) and I try to write in them daily. It gives me the occasional wake up call to see the changes in my mental attitude, my abilities, my levels of pain, my disappointments and  my circle of friends and loved ones. Much has changed in the last few years.
At the present moment my body aches all over and I feel very zombie like - you all know that feeling,but one of my biggest problems is the pain I am experiencing in my arms and hands. I say the biggest, because it makes it very difficult for me to type or to write and these are a must on my bad days. On better days, I can maybe take a short walk, do a little housework, or even go out shopping ( as long as I have access to a toilet).
As I type the pain is moving up to my shoulders and I know that when I come to try and rest tonight, sleeping will be a no-no! something so simple can set off the most intense pain. the body does take some understanding and I do try.
Medication is something I avoid, for several reasons, but I do use rubbing creams, take hot muscle soaks, if I can manage the bath and depend largely on my hottie, which has been known to follow me everywhere!
But, my blessings are many and I know it. I am sitting at my desk and looking out of the window onto fields, trees, birds and sky - though it,s a very dreary, murky, windy, wet day today - and I'm lucky that I can.
"Enjoy the little things in life, for one day you'll look back and realise they were the big things"
I try :-)
Love and Light.

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